Alastair Kent

Alastair Kent has worked in the field of rare and genetic diseases for more than 25 years.

Kent was the first Executive Director of Genetic Alliance UK (London, UK); his focus in this position concerned developing a voice and vision for a group of patients and carers of patients in science and health policy, working together across disease boundaries.

Kent is the co-Chair of the UK Rare Disease Policy Board, a member of the Rare Disease Advisory Group for NHS England and a member of the Genomics England Ethics Advisory Committee and the Access Review Committee (London, UK).

Now working on a consultancy basis, Kent continues to advocate for patients and their families, working with healthcare bodies, pharmaceutical companies and medical research organisations to ensure that the voices of patients are incorporated at all levels. Kent’s interests include policy development and healthcare planning and delivery.