FibroFlutters

FibroFlutters Patient Advocacy Organisation for chronic and rare illnesses is a patient-driven and focused patient advocacy organisation that is for everyone #notjustpatients.

The aim of the organisation is to connect different stakeholders from across the industry and help develop, nurture and advocate for multidisciplinary and multi-stakeholder approaches to all aspects of medical healthcare. It is hoped that as a result of these strong relationships, chronic illness and rare disease patients can receive the type of care and treatments that they need.

In addition to the work connecting stakeholders together, FibroFlutters also supporting disease education and awareness through better medical and health communications.

https://fibroflutters.com/